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The Meaningful Involvement of People with HIV/AIDS (MIPA) has been at the core of the HIV response since the beginning of the HIV epidemic. In this study, we compare two community engagement activities concerned with molecular HIV surveillance (MHS) in the United States: one governmental and one community-led. We examine the consultative aspects of each one, especially as they relate to people living with HIV. We point to the community-based effort—which used a participatory praxis approach—as an example of MIPA. We derive two best practice principles from this research from the field.


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19 Jul 2022
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  • Alternative title
    • MIPA in Community Engagement on HIV Surveillance

  • Journal title
    • Journal of Community Engagement and Scholarship

  • Volume
    • 14

  • Issue
    • 2

  • Date submitted

    19 July 2022

  • License
  • Keywords
  • Additional information
    • Acknowledgements:

      The authors would like to thank the webinar participants, as well the organizations that co-sponsored this work: United States People living with HIV Caucus, Positive Women's Network-USA, Legacy Project, Sero Project, Thrive SS, Reunion Project, Positively Trans, and the International Community of Women living with HIV/North America. While working on this manuscript, Martin French had support via a grant from Quebec’s Fonds de Recherche—Société et Culture (2017-BJ-202106).